undergraduate thesis
Patient associations and their impact on quality of life in patients with neurological diseases

Ivan Rado (2016)
Sveučilište Josipa Jurja Strossmayera u Osijeku
Medicinski fakultet
Metadata
TitleUtjecaj udruga bolesnika na kvalitetu života neuroloških bolesnika
AuthorIvan Rado
Mentor(s)Silva Butković Soldo (thesis advisor)
Abstract
Cilj ovog istraživanja bio je utvrditi koliki je utjecaj udruga na kvalitetu života neuroloških bolesnika te utvrditi razinu zadovoljstva radom neuroloških udruga subjektivnom procjenom zadovoljstva ispitanika radom udruga. Na temelju podataka 37 ispitanika promatralo se ima li rad udruga značajan utjecaj na povećanje kvalitete njihovih života nakon učlanjenja u udrugu. Ispitanici i metode Ispitanici su članovi tri neurološke udruge na području Osječko-baranjske županije. Udruga oboljelih od miastenije gravis „Dodir anđela“, Udruga bolesnika oboljelih od Parkinsonove bolesti „Buđenje“ te Udruga cerebrovaskularnih bolesnika „Cerebro“. Istraživanje je provedeno tijekom prosinca 2015. godine na redovnim sastancima udruga. Uzorak je činilo 37 ispitanika. Prosječna životna dob ispitanika iznosi 63 godine. Prosjek duljine trajanja bolesti je 13 godina, a prosjek duljine članstva u udruzi je 7 godina. Kao instrument ispitivanja korištena je anonimna anketa koja se sastojala od četiri područja: opće informacije, samoprocjena znanja i ponašanja ispitanika vezanih za bolest, prije i nakon učlanjenja u udrugu, te trenutno zadovoljstvo radom udruga. Rezultati Istraživanje je pokazalo da ispitanici samoprocjenom iskazuju značajno veće zadovoljstvo znanjima i ponašanjima vezanima uz njihovu bolesti nakon učlanjenja u udrugu. Najveću razliku prije i nakon učlanjenja pokazuju u tvrdnji koja se odnosi na uspostavljanje željenog kontakta i komunikacije s drugim bolesnicima. Iskazuju pozitivan stav o trenutnom radu udruga. Zaključak Istraživanje pokazuje kako rad udruga bolesnika značajno poboljšava kvalitetu života neuroloških bolesnika te da su članovi udruga zadovoljni njihovim radom.
Keywordspatient association quality of life neurological diseases Parkinson’s disease myasthenia gravis cerebrovascular diseases
Parallel title (English)Patient associations and their impact on quality of life in patients with neurological diseases
Committee MembersSilva Butković Soldo (committee chairperson)
Svetlana Tomić (committee member)
Davor Jančuljak (committee member)
GranterSveučilište Josipa Jurja Strossmayera u Osijeku
Medicinski fakultet
PlaceOsijek
StateCroatia
Scientific field, discipline, subdisciplineBIOMEDICINE AND HEALTHCARE
Clinical Medical Sciences
Neurology
Study programme typeuniversity
Study levelundergraduate
Study programmeUnivaersity undergraduate study:specialization in: nursing
Academic title abbreviationuniv. bacc. med. techn.
Genreundergraduate thesis
Language Croatian
Defense date2016-05-10
Parallel abstract (English)
Goal The goal of this research was to determine the effect of associations on the quality of life of neurological patients and determine the level of satisfaction with the work of neurological associations through subjective evaluation of examinees with the work of the associations. Based on the data gained from 37 examinees, it was ascertained whether the work of the associations has a significant influence on an increase of the quality of life after enrolling in an association. Examinees and Methods The examinees are members of three neurological associations from the Osijek-Baranja County: the association of myasthenia gravis patients “Dodir Anđela”, the association of Parkinson’s disease patients “Buđenje” and the association of cerebrovascular patients “Cerebro”. The research was undertaken during regular meetings of these associations, in December 2015. The sample consisted of 37 examinees. The average age of examinees is 63 years. The average duration of their condition is 13 years and the average duration of their membership is 7 years. An anonymous questionnaire was used as a survey instrument, which consisted of four domains: general information, self-evaluation of the knowledge and behavior of examinees before and after enrollment and current satisfaction with the work of the associations. Results The research showed that the examinees, through self-evaluation, show a significantly greater satisfaction with their knowledge of and behavior connected to their condition after enrollment in an association. The greatest difference before and after enrollment is indicated in the statement that concerns establishing contact and communication with other patients. They show a positive attitude toward the current work of the associations. Conclusion The research shows that the work of patient associations significantly increases the quality of life of neurological patients and that all members of associations are satisfied with their work.
Parallel keywords (Croatian)udruga bolesnika kvaliteta života neurološke bolesti Parkinsonova bolest miastenija gravis cerebrovaskularne bolesti  
Resource typetext
Access conditionOpen access
Terms of usehttp://rightsstatements.org/vocab/InC/1.0/
URN:NBNhttps://urn.nsk.hr/urn:nbn:hr:152:565803
CommitterBisera Kopf